Suffering from Wilson's Complications
Verfasst: 2. Jul 2024, 12:59
Hello everyone,
I am dealing with severe complications from Wilson's disease, including slow movement, constant hand tremors, inability to walk properly, and slurred speech. Recent MRI showed copper accumulation in parts of my brain. My body rejected treatment with Trientine and almost caused me a kidney failure.
I will be in Germany this August and urgently need recommendations for specialists experienced in Wilson's disease. Despite emailing many hospitals, I haven't received any responses.
Any advice or contacts would be greatly appreciated.
Thank you,
I am dealing with severe complications from Wilson's disease, including slow movement, constant hand tremors, inability to walk properly, and slurred speech. Recent MRI showed copper accumulation in parts of my brain. My body rejected treatment with Trientine and almost caused me a kidney failure.
I will be in Germany this August and urgently need recommendations for specialists experienced in Wilson's disease. Despite emailing many hospitals, I haven't received any responses.
Any advice or contacts would be greatly appreciated.
Thank you,